By: Leland Kim
KALIHI (KHNL) -- Three local brothers have been fighting a rare blood disease their entire lives. Like most brothers, Tuan, Kevin, and Anthony fight sometimes, but for the most part, they're inseparable. They're also close because they all suffer from Hyper IgM Syndrome, a disease that fight's the body's immune system. Today, the family is grieving over the loss of one of the boys.
He dreamed of becoming a doctor. Tuan Nguyen was inspired by the doctors and nurses who took care of him at the hospital.
"When he was there, the nurse and doctor at Kapiolani, they were earnest to help him," said Son Nguyen, Tuan's father.
Because of Hyper IgM Syndrome, Tuan's immune system became weak, and the disease attacked his organs.
"His liver disease spread to his stomach," said Son Nguyen.
Last month, Tuan was taken to the pediatric intensive care unit.
"He said I'm very hurt, very strong, and he love me and doesn't want to stay there anymore," said Lani Nguyen, Tuan's mother.
Tuan died at 8:30 pm, on October 12th.
"I never believed he'd get sick but just stay healthy," said Lani Nguyen.
"He was in pain. All he said was 'if.' But he could not say any more because of his lung," said Tuan Nguyen. "So after half an hour, he just passed away. He just was smiling, peaceful when he passed away."
"I guess I cried a lot," said Kevin Nguyen, Tuan's brother.
Even until the end, Tuan put others first.
"He keeps saying that he's worried for his brothers," said Son Nguyen.
Kevin and Anthony's only hope is to find a bone marrow match.
"I guess if you register and help us, one of you might be able to save us," said Kevin Nguyen.
The family hopes someone out there is a match.
"More people helping them means more chance for them to live," said Son Nguyen.
"Please register to help people like us," said Anthony Nguyen, Tuan's brother.
The Hawai'i Bone Marrow Registry has four donor drives coming up.
Sam's Club in Pearl City
Friday, October 20 from 9:30 am to 6:00 pm
Saturday, October 21 from 12 noon to 4:00 pm
Sunday, October 22 from 2:00 pm to 6:00 pm
William S. Richardson Law School at University of Hawai'i at Manoa
Monday, October 30 from 9:00 am to 3:00 pm