A surprise for young fighter battling rare disease - Hawaii News Now - KGMB and KHNL

A surprise for young fighter battling rare disease

Kyra Furukawa Kyra Furukawa
Tracy Furukawa Tracy Furukawa
Alan Furukawa Alan Furukawa

By Mari-Ela David - bio | email

WAIKIKI (KHNL) - A little girl on Oahu who's battling an extremely rare disease got a heart-warming surprise.

A couple weeks ago, KHNL News 8 introduced you to 5-year old Kyra Furukawa of Kapolei.

Her disorder left her in such agonizing pain, she could no longer walk. On Saturday, she learned she's going to fly.

"You are going to go to Disneyland!" announced Michael Perry of The Perry and Price Saturday Morning Show Live at Jimmy Buffett's at the Ohana Waikiki Beachcomber.

It's a surprise brought on by those touched by Kyra Furukawa's courageous medical battle.

"You're going to see all the princesses you could possibly handle," said Perry.

It's a welcome getaway, spearheaded by the KSSK team once they learned Kyra is one of the Disney Princesses' biggest fans.

"She's so excited!" Kyra's mom, Tracy Furukawa said jokingly about her shy daughter's reaction to the unexpected gift to Disneyland.

After the show, the surprise family trip did begin to sink in.

"Who do you want to see in Disneyland?"

"Cinderella," said Kyra softly.

"Why Cinderella?"

"Because I like her," said Kyra.

"We're going to Disneyland!" said Kyra's mom, Tracy.

"It's like winning the lottery, this never happens," said Alan Furukawa, Kyra's dad.

KSSK brought the Furukawa's on to The Perry and Price Saturday Morning Show, after learning about Kyra's story through the Kapiolani Medical Center.

Kyra was one of the patients featured at the Kapiolani Radiothon for Kids, a 2-day broadcast on KSSK raising money for the Kapiolani Medical Center for Women & Children, a non-profit.

Kapiolani Medical Center is where the young trooper is getting treatment and physical therapy. The 5-year-old suffers from juvenile dermatomyositis, a rare condition where the immune system attacks the muscles. Symptoms first flared up in April. By May, Kyra was in such excruciating pain, she couldn't walk.

But now, this young trooper is getting back on her feet.

"She is pretty much almost back to the old Kyra that we know," said Furukawa, Kyra's mom.

And she's almost back to her normal life, which is Kyra's ultimate happiest place on earth.

The Furukawa's say Kyra may walk independently again in a couple months.

Her mom says the first thing Kyra wants to do once she's done with therapy is go back to school.

Juvenile dermatomyositis is an incurable disease that's so rare, only three children out of a million get it.

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